CYNDI: SARCOIDOSIS

CYNDI: SARCOIDOSIS: I was diagnose with sarcoidosis January 2009. My symptons were loss of weight, I was 180lbs, and went down to 135lbs.  I had shortness o...

SARCOIDOSIS

I was diagnose with sarcoidosis January 2009. My symptons were loss of weight, I was 180lbs, and went down to 135lbs.  I had shortness of breath, excessive coughing and fatigue.  I went to my primary physician who suggest that I see a lung specialist. He  examined me and sent me for xrays which showed that I had lymph nodes in my lungs.  He referred me to get a biopys and it showed that I have sarcodosis.  My sarcoidosis is so bad that I had to be put on steroids.  I go every three months for chekups and breathing test, which showed that the sarcoidosis spread to both lungs. Having  this disease is horrible. I wake up with coughing spells, I cough up heavy mucus that leaves me ehausted and with chest pains.  I get fatigue doing daily activities other effects of this disease is, I get skin legions and rashes, joint and muscle pain, blurred vision and I never know when this disease with attack my other organs. I am told that there is no cure for Sarcoidosis and not much you can do for it. it's now 2012 and I am still suffering with Sarcoidosis.  I want to petition that they make this disease a priority.  Please go to Change.org and sign the petition to the CDC to make this disease a FACTOR.  I and no one else should have to suffer with this disease.

Sarcoidosis (from sarc meaning flesh, -oid, like, and -osis, diseased or abnormal condition), also called sarcoid, Besnier-Boeck disease or Besnier-Boeck-Schaumann disease, is a disease in which abnormal collections of chronic inflammatory cells (granulomas) form as nodules in multiple organs.^[1] The cause of sarcoidosis is unknown. Granulomas (of the non-caseating type) most often appear in the lungs or the lymph nodes, but virtually any organ can be affected. Normally the onset is gradual. Sarcoidosis may be asymptomatic or chronic. It commonly improves or clears up spontaneously. More than 2/3 of people with lung sarcoidosis have no symptoms after 9 years. About 50% have relapses. About 10% develop serious disability. Lung scarring or infection may lead to respiratory failure and death.^[1] Chronic patients may deal with waxing and waning symptoms over many years.^[2]