Monday, May 7, 2012

CYNDI 5/7/2012

I know I said I was writing anymore but hey, this is what makes me feel good.  So check out my video blog:


This is to those I forgot to mention Ameila, Virgina and Toogud thank you guys for your support and to Loving and Caring you guys are the BEST...

As always BREATHE WELL

Wednesday, May 2, 2012

CYNDI 5/3/2012

Last night I was feeling depress, down in the dumps again complaining WHY ME.  I spoke to some ladies in a group called Loving and/or Caring For Someone With Sarcoidosis. They gave me their horrors of sarcoid and I must say what I am going through is just the tipping of the iceberg.  I am afraid, some had sarcoid in the liver, brain, eye and other bodily organs. I wished i would have talked to them before I took this drastic measure.  I felt some type away last night and this what happened:



You can see the sarcoid on my scalp if you look closely, my scalp is suppose to look light, but it is dark because of this disease.  I was going to shave it all off but my husband stopped me.  I need my family to help me through this, they don't know my pain.  If only they would call and say hey auntie how are you.  Don't get me wrong 1 or  2 has talk to me BUT I have a lot of nieces, you wouldn't believe it .  Anywho, i'll be okay, my sarcoid sisters/brothers are now giving me support.  
As always BREATHE WELL.